S went in for his annual neurology check up at the end of June. We were told that he looks wonderful and that this visit could have been the last. However, our neurologist wanted to see him one more time. We will go back next July for our final checkup. Provided that S stays seizure free between now and next July (which he should), he will not need to have any more EEGs.
S is still being seen twice a month by a physical and cognitive therapist. We recently added an occupational therapist to the mix. S has choked several times on crunchy foods, so he got assessed for a feeding delay. The occupational therapist agreed to take him on as a client for a few months, but she thinks he'll learn quickly enough to be finished with OT by October. Our cognitive therapist has told us that S will definitely not qualify for CT at his annual evaluation in October since he's doing so well. The physical therapist is the only one we might continue to see on a regular basis. S is still having some balance issues that cause him to fall. Our neurologist believes S' balance may be the only thing that was affected by the seizures. It's much better than what it could have been, so we won't complain. We recently took him to get a hip x ray done to rule out misalignment of the hips. All results came back normal, so we're waiting to see where to go next to help his balance.
S is saying more words than I can count and repeats everything we say. He has even begun stringing words into simple sentences. S has also surprised us by taking an interest in letters. He can now recognize 13 letters when asked to find random letters in a puzzle. S has also learned to climb stairs, so he's keeping mommy and daddy on their toes!
We are also very excited to announce that S will officially be one year seizure free on July 30th! This is a huge milestone for S, and we are so excited to celebrate with him. Be on the lookout for celebration pictures later this month. Don't forget to send him a congratulations that day if you think of it!
