Thursday, August 4, 2016

The End of One Journey

On August 2nd, S was officially released as a neurology patient. We went in for a final checkup and were told that he looks great. Our amazing doctor let us know that S will forever be considered her patient and we can always call with any questions or concerns. It was reassuring to hear that if something happens in the future with S' neurological issues, we are always put back in as her patient.

She asked how he was doing on physical development and mental development. We told her that he's doing great, but did add that we have been astounded with his memory capacity. While I'm fully aware that young children embrace new knowledge like a sponge, his memory seems to be abnormal. We mentioned that you can teach or tell him something one time, and he will remember it six months later (even if the subject is never brought up again). Examples of this are printed words, names, numbers, even coin amounts. She agreed that it was unusual and told us to watch him. If he continues to keep this capacity of memory, she told us to follow up with our pediatrician and have his IQ tested around the age of five. The neurologist let us know that she would be unsurprised if he turned out to be "one of those young children who figures out how to take apart a game console to see how it works before correctly reassembling it". I'm not really sure what to make of that, but I guess we will see what the future holds.

Who can say for sure what effect the seizures had on the development of his brain? We were told to expect cognitive and physical delays, and neither happened in any area of great concern. I know there is so much we still don't know about the ever changing brain, but I will always be a tad skeptical that these seizures altered his brain development - even if it was in the opposite way we expected. I will be interested to see how he progresses over the next few years. I definitely do NOT think my child is smarter than any other, so please don't hear me saying that! I just wonder sometimes at his odd capacity for memorizing things!

I will try to follow up at least twice a year on his progress. We are excited for this next chapter in our lives! A big thank you to S' amazing neurologist. You have been such a big part of our lives over the last two years, and we will be grateful forever for all you did for our little boy!