EEG Results

Yesterday Seth had his follow up EEG. I think it's safe to say that it was not an enjoyable experience. Seth had to be sleep deprived for four to six hours prior to the procedure. He screamed throughout the entire prep and clean up. Josh and I were unable to see much of the screen, so we had no ideas as to what his results were this time around.

This was Seth after his EEG. He wasn't the happiest baby yesterday!

Today we met with Seth's neurologist to hear the results of yesterday's EEG. His EEG is still showing abnormalities, but there are far less spikes in his brain waves than when he was diagnosed. According to the neurologist, this is considered normal. She said she did not expect his EEG to be completely normal so soon because he is so young. It was explained to us that the brain is still developing, so it will take some time for the spikes to completely disappear.

The major positive is that Seth's EEG from yesterday was easier to read. His first EEG showed so many spikes that the neurologist had to zoom out to see the complete wave. She was able to view the entire wave from yesterday without any problems.

We are supposed to begin weaning Seth off the ACTH today because things are expected to get better over time. We go back for a follow up EEG in three months to see if the spikes in his brain waves are continuing to get better. While today's news wasn't the absolute best news we were hoping for, it is reassuring to know that Seth's EEG is creeping a little closer to normal.

Our second set of positive news today was that we have tentatively been given permission to slowly return to crowds. Josh and I have decided to tackle a grocery store visit with Seth before attempting anything else, but it's so nice to know that we can begin to return to normal activities. We are still very cautious to let anyone other than myself or Josh hold him due to unknown germ exposure, but it's a small victory!

We are hopeful that Seth will continue to respond well to the ACTH and develop normally. We are pleased with today's results and are praying for his EEGs to progress to normal with time. God has a plan for our little fighter, and I know He is with us through this journey in Seth's health! Thank you again to everyone who has kept our little boy in their thoughts and prayers! Stay tuned for more updates!