We knew ahead of time that this day would not be enjoyable. EEGs are never enjoyable for Seth. As expected, he screamed throughout the preparation for the EEG and fought me when it was time for the sleeping portion. I was able to get a clear view of the screen today and was upset to see that several large spikes were still appearing on the screen at random times.
As we left to head to his neurology appointment down the hall, I prepared myself for the inevitable. We were going to be told that his EEG still wasn't clear. When his neurologist walked into the room to see us, I was shocked to see a smile on her face. We were told that his EEG was FINALLY clear after all! I obviously don't know what to look for during the test. :)
She said there are still a couple of "sharps" occurring when he falls asleep, but everything was normal other than that. The sharps were explained as being much smaller than spikes and not a huge worry.
She asked about developmental milestones, and we mentioned that he still seems to be struggling with speech. She told us that while she thought everything would turn out fine, a reference to ECI (Early Childhood Intervention) would probably be in his best interest. That should be set up later this week.
We celebrated his clear EEG today with family. It was wonderful to be able to share his good news with the people we love most!
Our other great news is that Seth began weaning from the Vigabatrin tonight. In four weeks, he should be off it completely! We have been told to return for his next neurology checkup in January. He will not need another EEG at that appointment. We are so excited that our little superhero is doing so well! Thank you for all your continued prayers and support!
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